Skip To Content

News

All media inquiries can be directed to mediarelations@cysticfibrosis.ca or by calling 1-800-378-2233.


Trikafta funding recommendation for rare cystic fibrosis mutations brings hope to some, but falls short for others, says Cystic Fibrosis Canada
November 6, 2024

Cystic Fibrosis Canada acknowledges a new significant step forward in access to the life-changing cystic fibrosis drug Trikafta.

Read More
Keeping up with the changing state of cystic fibrosis
10/21/2024

Cystic Fibrosis Canada receives funding from Canada's Drug Agency to continue strengthening the Canadian Cystic Fibrosis Registry  

October 21, 2024 – Today, we were pleased to receive nearly $200,000 in funding from Canada’s Drug Agency (CDA) as part of their efforts to strengthen rare disease registries in Canada. 

Read More
Let’s Ensure the Right to Try for Everyone with CF.
July 18, 2024

Our commitment at Cystic Fibrosis Canada to ensure everyone with cystic fibrosis (CF) can live W/O Limits is more vital than ever!

Read More
CYSTIC FIBROSIS CANADA CELEBRATES APPROVAL OF LIFE-CHANGING CF DRUG FOR 152 RARE MUTATIONS, EMPHASIZES NEED FOR ACCESS FOR THOSE STILL LEFT BEHIND.
July 17, 2024

Cystic Fibrosis Canada is encouraged by a recent decision by Health Canada to approve the life-changing cystic fibrosis (CF) drug Trikafta for some living with rare mutations that lead to CF.

Read More
GÉNOME QUÉBEC AND CYSTIC FIBROSIS CANADA PARTNER TO LAUNCH: TACKLE RARE, ORPHAN CFTR MUTATIONS RESEARCH COMPETITION
June 12, 2024

Génome Québec and Cystic Fibrosis Canada announce the launch of the Tackle Rare, Orphan CFTR Mutations Competition to support research on rare mutations for which no treatment is available, with the long-term goal of developing novel therapies.

Read More
CYSTIC FIBROSIS CANADA’S 2024 RESEARCH FUNDING COMPETITION IS NOW OPEN
June 6, 2024

Cystic Fibrosis Canada has opened its annual grant competition for 2024. Canadian researchers with an interest in cystic fibrosis (CF), including its connection to diabetes and cancer, can now apply for funding to be awarded starting in early 2025.

Read More
FUNDING OF CYSTIC FIBROSIS DRUG TRIKAFTA EXPANDED FOR CANADIAN CHILDREN AGED 2-5 YEARS OLD
May 17, 2024

Progress has been made towards improving access to the life-changing cystic fibrosis (CF) medication, Trikafta, in Canada.

Read More
CF CANADA COMMUNITY FORUM: UNCHARTERED TERRITORIES
May 5, 2024

CF Canada successfully hosted the virtual CF Canada Community Forum: "Unchartered Territories" on April 26, 2024. If you couldn’t make it to CF Canada’s Community Forum “Unchartered Territories" last week, CF Canada has you covered!

Read More
A NEW PARTNERSHIP TO FUND OMICS RESEARCH ON CYSTIC FIBROSIS
May 3, 2024

It is with great pleasure that Génome Québec and Cystic Fibrosis Canada join forces to create a new funding program to support omics research on cystic fibrosis.

Read More
FORWARD TOGETHER: A REPORT ON CYSTIC FIBROSIS CANADA’S IMPACT IN 2023-24
May 2, 2024

 The team at Cystic Fibrosis Canada is pleased to share our 2023-24 Impact Report.

Read More