About Us
Cystic Fibrosis Canada is a national not-for-profit corporation and one of the world’s top three charitable organizations committed to improving and lengthening the lives of people living with cystic fibrosis (CF). We are thrilled to share our updated Values and our new Strategic Plan, driven by our community’s priorities.
MISSION
To act boldly for all Canadians living with cystic fibrosis so they can live longer, healthier, fuller lives.
VISION
Living fully, beyond the limits of cystic fibrosis.
Our Values
Connected
We are strongest when we collaborate well with our team and are connected to our community.
IMPACTFUL
We are intentional in our focus to ensure we create a better future for people living with CF in Canada.
INCLUSIVE
We nurture a diverse and inclusive environment where everyone feels valued, and is heard, seen and respected.
BOLD
We think and act boldly to inspire the best outcomes for people living with CF in Canada.
Strategic Plan 2024-27
"It is a new day. Not just for us at Cystic Fibrosis Canada as we kick off our new strategic plan but for this disease. Cystic fibrosis is in a state of change, with new therapies that can help improve the health and wellbeing of many people diagnosed with CF. Children diagnosed with CF today will benefit from a much different disease trajectory—new treatments make that possible. And that’s really good news.
But we also know that today, many people living with CF still face an immense burden. There is no cure, some people can’t access or even benefit from these new treatments, many people are still very sick and too many are dying far too young. We still have much work to do.
Our plan over the next three years will focus on moving the needle improving the burden faced by our community, improving access to needed therapies and will build for the future. Our focused approach will shine a spotlight on those most impacted, most burdened and at risk from their CF.
You are the reason we do what we do. And we thank you for participating in this work.
- Kelly Grover, President and CEO
View full 2024-27 Strategic Plan
KEY GOALS
1. We will influence health and support systems.
- Our goal is that people who do not have access to Trikafta and could benefit from it, do. There needs to be equitable access to needed medications across this country.
- We know people with CF face a big financial burden (cost of medications, time off from work or school, being in and out of the hospital). We will push to reduce that burden.
2. We will connect to people and resources.
- We heard during our consultations about the emotional burden people face and that connecting to people with a similar experience helps improve emotional wellbeing. We will work hard to make those connections and ensure as we learn about important health issues, our community does, too.
- A big part of this work also includes improving our volunteer and community engagement experiences. We have shared our refreshed approach to volunteer engagement and will continue to make sure you have meaningful opportunities to connect with CF Canada.
3. We will ensure our care model meets the needs of our community, for today and tomorrow.
- People’s treatment needs have evolved and are quite varied across the country. We will invest in ideas that help address the priority burden of care issues felt by our community.
- We need to prepare for the future of clinical care as our community becomes healthier and new needs emerge. This plan will build for the care needed for tomorrow.
4. We will continue to learn more and advance knowledge about CF in priority areas.
- There is no cure, we need new solutions and answers. We will focus our research on priority areas for our community (such as managing lung infections). We will invest in research that will bring change sooner, for those who most need it.
- We will ensure clinical trials are available—such as new genetic therapies for people who cannot benefit from modulators—for those with the greatest need.
Strategic Imperatives
To guide our operations and improve the foundation on which we build our programs across the organization during this Strategic Plan, we’ve identified these four strategic imperatives:
HARNESS DATA
CULTIVATE CONNECTIONS
SIMPLIFY & MODERNIZE
ENABLE A THRIVING CULTURE
beyond Further: our new key concept
Along with our new strategic plan, you’ll see a new concept unfold to support our work and communications. We used FURTHER for the last three years to reflect our push to keep moving toward success and overcome obstacles on behalf of the CF community. Now we go even further.
Cystic fibrosis tests limits every day. It has pushed people of all ages, held them back. Closed doors on dreams. And taken away far too many people we love.
But the CF community continues to persevere. We continue to push back. Break free. Open those doors to dreams and walk right through. CF will never limit our drive. Our ambition. Our resolve.
It will never limit our relentless search for breakthroughs, the kind that have dramatically changed the CF story in Canada since our founding in 1960.
But limits continue to be tested. There are far too many people still without treatment and facing painful daily struggles.
So, we’re planting our flag in the ground to declare that we won’t stop until everyone can live W/O Limits.
And speaking of new initiatives, stay tuned for an exciting new CF Canada website! We are committed to sharing accurate, relevant and up-to-date information with our community and you’ll see just that, in a beautiful new package, at cysticfibrosis.ca coming up very soon!
A bit more about us
Since being founded by parents in 1960, Cystic Fibrosis Canada has dramatically changed the cystic fibrosis (CF) story.
In our 60-year history, we have advanced cystic fibrosis research and care that has more than doubled life expectancy for Canadians living with cystic fibrosis. We’ve contributed to the global body of CF knowledge, funding research achievements such as mapping the gene that causes cystic fibrosis, in 1989. And we’ve advanced access to life-changing CF medicines in Canada through relentless advocacy and government relations work.
Today, Cystic Fibrosis Canada is a leading organization with a central role engaging people living with cystic fibrosis, parents and caregivers, volunteers, researchers and healthcare professionals, government and donors. We work together to change lives through treatments, research, information and support.
Despite our remarkable progress together, we are not yet done. Not when half of the Canadians with cystic fibrosis who died in the past five years were under the age of 37. We are pushing further!
Learn more:
Strategic Plan 2024-2027
Our Teams
Publications and Financials
Careers
Standards & Policies